Sometimes I think of the fact that living with SCD can have its varied ‘ups’ and ‘downs’ and it makes me cringe. I know you all could be questioning why most of my writings lately seem less focused on Sickle Cell Disease. The truth is that the blog is more about my journey living with SCD, my high points and low points, my best days, and sad days. I can’t give what I do not have that’s why many times, I offer this platform to you warriors to share your views or stories. You could be asking out loud “but…

This is why I prefer to do stuff when majority of you are asleep. My site under maintenance for the most part of this week was a bit disturbing. At the end of it all, the change I intended to make was done in a matter of seconds when I sat down and thought it through. Looking at the site now, I guess you all have spotted my somewhat small change. It’s just that this somewhat small change could be a bit cumbersome without the technical knowhow. For those of you with web design experience, you may be able to…

I had to write a new post today although I was a bit at loss for what to say. Talking yesterday at a gathering with some of my favorite people, seemed to spark a desire in me to start a new project. These persons, made me realize I had a gifting in an area that could open doors for me, if I harnessed it. As I speak right now, I’m drawing up a plan of how to go about it. There’s so much involved and I hope I don’t back out at the last minute. I know you all will…

It was necessary to hasten my post today. Why? to celebrate you, my network of friends that seem to have increased in number. As I celebrate you all this time around, I thank you for being a part of my life. I may not know you all by names but just knowing that you all make up my support network, in my journey – living with Sickle Cell Anaemia, makes me a happier me. It’s been a thrilling 22 months blogging and sharing details about my life, all with the aim of providing succor to you, in whatever little way…

I have a smile on my face today. Thank you for all your prayer and well wishes. It was a dark tunnel walk I’d live to remember but God had gone a step ahead of me. I guess now that it’s over, it’s more ideal to share and explain things in detail.  What transpired the day I sought other opinions? I was informed by the three specialists that there was an alternative for a hip replacement surgery to arrest Avascular Necrosis (AVN), at an early stage. So an MRI scan was requested to deduce how far gone the AVN was…

I’m here…. Just last week, I found myself gazing on because I gotten other opinions from three experienced specialists. However, the diagnosis and remediation wasn’t one I was prepared to hear as they all said the same thing but in more complex ways. So, here I was, seated quietly, gazing on. Their opinions you ask? that I had no other choice than to go through the “doors” and have the procedure done. As I stared blankly, at a picture of a hip replacement, all I could think of was the “after pain”. However, this wasn’t what shocked me the most.…

I’d told myself I wasn’t going to blog about this particular issue so as not to discourage you warriors but I guess it’s become imperative of late being that it’s gone on for quite sometime now. If anyone had told me that there was a likelihood that what I suffered at the age of seven, would come back some day, I would’ve called it a big bluff. However, the feedback I’m getting from the medical field is that it’s common in SCD to reoccur. So what am I referring to exactly? Avascular Necrosis (AVN) – the death of bone tissue…

A few times I tried to access the backend of my site only to discover it was experiencing a technical issue, have in no doubt been rather unpleasant. I recall one particular incident when I contacted the hosting company and upon connecting to me, their female personnel sadly informed me that my site was under auction.  Wow! I literarily jumped out of my skin. “Are you serious” I retorted? Knowing I had fully paid my bills. “Yes ma’am, it looks so”, she explained.  “I’ll take another look. Please provide your site information once more” she asked. Whilst she was checking,…