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    Onuoma's Blog

    The new dawn (2)

    September 25, 2020 - By 

    So to continue from where I left off sharing about some of the victories that occurred in my life. I noted in my previous post – “The new dawn” that just before the downsizing and my being asked to leave the first organization where I worked, I was drafted during my tenure to work in two different units. Well when this occurred I was a bit disappointed but it was because the first unit where I worked was considered to be stressful for my health hence the management of the company decided to change the unit. Unknown to me that…

  • Shared Stories

    It happened to me too – Jai’s Memoirs

    September 18, 2020 - By 

    My name is Jai and I have the SS genotype which was diagnosed when I was born. I used to get chronic transfusions, used to have a Port-A-Cath (i.e an indwelling catheter for transfusion), I’ve had acute chest syndrome over eleven times and have also had my gallbladder removed. It seems the older I get the more pain I’m in. I’ve been in the hospital every month since May 2020 whilst being a college student and it was hard doing both. I graduated from college in May and now I am going to nursing school to become a nurse to…

  • Medical Perspectives

    Chlorophyll and its relevance to Anaemia

    September 11, 2020 - By 

    Now a quick recap of k0122670 post on experiencing severe anaemia, brings to mind one notable blood booster I was introduced to while experiencing various stages of growth living with Sickle Cell Disease, namely Chlorophyll. Anaemia occurs in SCD when the red blood cells die early. This means there are not enough healthy red blood cells to carry oxygen throughout the body. When this happens, a person might be tired, dizzy, have a fast heart rate, be jaundiced, possess slow growth etc. Blood transfusions is used to treat severe anaemia. A sudden worsening of anaemia resulting from infection or enlargement…

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    Shared Stories

    From the diary of k0122670.

    September 5, 2020 - By 

    My name is Chuk Obanye. I was born with Sickle cell anaemia in May 1980. I am happily married with 3 beautiful daughters. The aim of my brief background introduction is to provide hope to anyone currently suffering from Sickle cell anaemia and to simply share with you some of my experiences along with some tips on managing the effect of this blood disease. As a young child growing up, I suffered constantly with having low blood counts, iron deficiency, fatigues and loss of weight just to name a few. I also had a lot of hospital admissions which you…

  • woman on rock platform viewing city
    Onuoma's Blog

    The new dawn.

    August 29, 2020 - By 

    There are so many countless victories that occurred in my life to share, so don’t think that majority of my life has been beset by lows. However I needed to chronicle first the battles for ease of reading. Now let me just go back memory lane and start chronicling the victories.In this case, I had just been redeployed to serve in Lagos state and was wondering which firm would be willing to take me into its employment for my youth service. Only for an old school friend of mine to turn up and tell me that there was an opportunity…

  • woman on rock platform viewing city
    Onuoma's Blog

    A new outlook.

    August 22, 2020 - By 

    I guess I’ve written quite a bit of content in these past few weeks and I really do hope that all I’ve written has blessed you in one way or the other. It’s been a thrilling experience for me these past few weeks sharing with you how I’ve coped living with Sickle cell disease and to not agree that the purpose of the blog was achieved would be wrong. I hope each and everyone of you that has read through my blog has been blessed in one way or the other even if you may not be living with the…

  • Medical Perspectives

    High Altitude and SCD.

    August 15, 2020 - By 

    I remember vividly my encounter when I embarked on an international trip all alone as a young adult. I was going on holidays and was rather ecstatic about my trip. My hotel had been booked and tickets had been paid for but I failed to prepare for what was to come as I travelled that day. Much later, I got to understand that in sickle cell anemia high altitudes could actually trigger a crises due to the reduced oxygen levels and cold cabin temperatures. This is because there are fewer oxygen molecules in the same level of air we inhale…

  • Medical Perspectives

    #Tips on Managing Sickle Cell Crises from home

    August 8, 2020 - By 

    In continuation of this week’s post on #Managing Sickle Cell Crises from home, here are some tips shared at the event. The talk series which held on Thursday 6th August 2020 by 1pm was given by Dr. Emmanuel Olumide Adeniyi the in-house medical personnel of Nirvana Initiative an NGO dedicated to educating the public about Sickle Cell Disorder. See below the link to the post.

  • Onuoma's Blog

    It could have made me call it quits.

    August 1, 2020 - By 

    Now to talk about the one incident that almost made me call it quits. This incident occurred upon my recovery from my near death experience with the ninth exchange blood transfusion I had. Like I stated in my last post, I woke up in the intensive care unit of the hospital asking myself who I was and trying to recollect my name and everything about myself. I had almost forgotten how to walk because each time I took a step my legs were jittery. I also had bed sores and could hardly take in any solid food without throwing it…